Bittersweet Symphony of Life

This week is the hardest on me and Chris. Drew's birthday is March 27th. The days leading up to his birth were filled with excitement, wonder, hope, and promise. As I got closer to his due date, 10 years ago, I asked my tummy every day 'do you want today to be your birthday?' We didn't know if our baby was a 'he' or a 'she'. We didn't want to. We believe that God has a plan for all of us; that as long as our baby was healthy, we would be happy. Our family would be happy. We trusted God. Still do.

Drew's birthday is always bittersweet for us. It was the best and worst thing that ever happened to us. Best, cuz we had our beautiful, perfect son. Worst, cuz his birth resulted in such damage to him that his life would be filled with extra challenges, obstacles, difficulties, and disappointments that most others are obilvious to. We are grown, and can handle ANYTHING that life can throw at us. He, on the other hand, is an innocent angel that has to battle not only his body every minute of every day, but society and insurance companies and ignorance and stupidity and close-mindedness and...I could go on and on. The purpose of this blog is to 1)let everyone know how cool Drew is, 2) to urge everyone to see the value in everyone, 3)to educate people that God shows himself in all of us, especially in the 'least' of us. 4) to remind us that everyone needs help--use your gifts to help others when you can.
Boogie (cuz we boogie down...he loves music) is a cool kid who has made more strides in 10 years than most do in a lifetime. Please, when you see kids or adults that are different, just treat them like they (and you)would want to be treated. With basic respect, and with God's grace. I am gonna quote one of my favorite artists, Pink. She seems to have a great understanding of our people. Misfits. Those who don't fit in, for whatever reason. Me. You. All of us, at one time or another. Her lyrics: 'Pretty, pretty please, don't you ever, ever feel that you're nothing, less than perfect...to me...'
Peace.

Life is Ridiculous...

I said it on my FB page, and I will say it again: Life is Ridiculous! I don't know if it's the long, cold, lonely winter or just bad Karma, but there is a lot of crap going on now with people we love. Betsy, my very, very, very great friend and reminder of 'you need to blog about Drew more often!' is going thru some stuff. She is tough; I don't doubt for a second that she will come out on top, after bossing several medical professionals around and making some sweeping policy changes. That is one thing she is great at: making people take notice of things that need to be improved/changed/re-done. There are a million other things I could list too. She has my vote if there is an election to rule the world. She told me once that Drew had 'spirit'. That was the nicest way anyone has ever described horrible meltdowns and seemingly endless tantrums. Most of which occured when we were trying to talk on the phone! LOL
I still refer to those things as 'spirit'. Thank you for that, Beth! That, and million other things that I don't even have to refer to cuz you can read my mind! I know you are an avid follower of Drew's blog, and I hope you know that across the miles, we are thinking of you, praying for you, and missing you like crazy. You ROCK.