Crazy Legs Kijek rocks!!! He is doing so well in Lokomat...today Terri took the guidance force (amount of work robotic legs do) down to 40%! That means that he was doing 60% of moving his legs, while holding up 50% of his body weight!
He continues to do the entire 45 minutes--that is a lot of work!!! He makes us so proud at how hard he works (when he wants to...LOL). He cracks me up.
I am gonna take some pics (keep forgetting my camera-UGH) so you can see what the Lokomat is.
Hope everyone has a great weekend!!
Wednesday, April 28, 2010
Sunday, April 11, 2010
Ya take the good, ya take the bad...
Things have really busy around here lately...Drew's 9th birthday was a blast, with lots of school and baseball friends in attendance! We are blessed to have a circle of amazing friends and their families. We bowled, played pin-the-tail on the donkey (more like 'walk up and stick the tail on...our kids aren't always fond of blindfolds, spinning, or being handled!!) and Drew got a lot of very nice gifts.
We started Lokomat again...we did it last year, it's the treadmill gait-training with the robotic legs that assist in patterning and weight bearing. Drew loves it. He worked up to the 45 minute mark on the second session! 45 minutes is the max, but Terri, his PT can increase his weight bearing and decrease the machine help, so he has to work harder each session. I am excited to see what the next 8 weeks will bring!
He is doing well in school, we are excited for baseball and summer, and our trip to see Aunt Terri in July.
Our next adventure is the MDA Stride & Ride on May 2. We are on a team called Marisa's Music Makers--she is a friend of ours that has Duchenne Muscular Dystrophy. Our team is raising money to send kids to summer camp so they can have a lilttle bit of fun this summer. May 11 we are going to Lansing for a rally called 'Walk a Mile in My Shoes' to support/increase awareness for the developmentally disabled. Looking forward to both events!!!
Unfortunately, he has been having a lot of seizures the past month. He had another bad one yesterday afternoon, and had a second one 40 minutes later (not as bad) even tho he was medicated with Diastat (to stop seizure activity and knock him out). We are increasing one of his meds, hopefully that will help. I don't know if it's cuz he gained some weight, it's Spring, or what is causing them. Scary thing is--he stops breathing when he has seizures. I will never used to seeing him turn blue and convulvse violently, no matter how many he has.
If you are a spiritual person, please pray for Drew and us. For him, so he doesn't regress or have to endure these seizures. For us, so we find the strength and wisdom to protect him from seizures, so he doesn't hurt.
Thanks to all our followers...It makes me so happy when I hear you mention that you read the blog!! He is my FAVORITE subject, after all!!
We started Lokomat again...we did it last year, it's the treadmill gait-training with the robotic legs that assist in patterning and weight bearing. Drew loves it. He worked up to the 45 minute mark on the second session! 45 minutes is the max, but Terri, his PT can increase his weight bearing and decrease the machine help, so he has to work harder each session. I am excited to see what the next 8 weeks will bring!
He is doing well in school, we are excited for baseball and summer, and our trip to see Aunt Terri in July.
Our next adventure is the MDA Stride & Ride on May 2. We are on a team called Marisa's Music Makers--she is a friend of ours that has Duchenne Muscular Dystrophy. Our team is raising money to send kids to summer camp so they can have a lilttle bit of fun this summer. May 11 we are going to Lansing for a rally called 'Walk a Mile in My Shoes' to support/increase awareness for the developmentally disabled. Looking forward to both events!!!
Unfortunately, he has been having a lot of seizures the past month. He had another bad one yesterday afternoon, and had a second one 40 minutes later (not as bad) even tho he was medicated with Diastat (to stop seizure activity and knock him out). We are increasing one of his meds, hopefully that will help. I don't know if it's cuz he gained some weight, it's Spring, or what is causing them. Scary thing is--he stops breathing when he has seizures. I will never used to seeing him turn blue and convulvse violently, no matter how many he has.
If you are a spiritual person, please pray for Drew and us. For him, so he doesn't regress or have to endure these seizures. For us, so we find the strength and wisdom to protect him from seizures, so he doesn't hurt.
Thanks to all our followers...It makes me so happy when I hear you mention that you read the blog!! He is my FAVORITE subject, after all!!
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