'Be who you are and say what you feel because, those who mind don't matter and, those who matter don't mind.' ~Dr. Seuss

Thursday, February 25, 2010

Cool things

Drew did a couple cool things this week in therapy. We attend Crawl, Walk, Jump, Run Therapy Clinic and are blessed to have some of the most skilled and creative therapists in the world. They are encouraged to treat the whole person...and are reallly in tune with each child and adult they treat.
They make therapy fun!
Anne, the Awesome OT was working with Drew, and she was counting to 10. She stopped at 9, repeating 9,9,9 and he looked at her and smiled, as if to say 'ummmm, you are doing it wrong!' :)
THEN, she was spelling his name out and she purposely didn't put the E in his name. He said 'neh', meaning 'no'. I am so proud! I knew he knew numbers, but didn't realize that he could recognize his name, enough to know if it was correct.
I wish there was a way to test these kids that are trapped in bodies that don't work correctly. Their receptive language is very good--but since we can't know what they know, we keep the faith and keep celebrating the tiny victories.

Tuesday, February 16, 2010

I was asked to write a bit about what baseball means to us--we have played on this wonderful league for 4 years. We start in the June...come see a game!!

What Challenger Baseball Means to us:

I became aware of Challenger Baseball from an issue of Sterling Heights Special Recreation. I was looking for an outdoor activity that would entertain my son, Drew. Our days were filled with school (if he was well enough to go), doctor's appointments, therapies, working on ADL's, stretching his muscles so he would have proper range of motion and not cramp and contract, and reinforcing what we did in his OT, PT, and Speech therapies.
I wanted us to have some fun. I wanted us to join a team, where he would learn patience, responsibility, teamwork, and make friends. I wanted us to have something other than therapy and I could actually answer the question: "What's new with Drew?", since we don't really have 'Milestones'...we have fraction-of-an-inch-stones. Our successes are measured differently than most.
Challenger Baseball provides us with a place where we are part of a team, a community of like-minded, open, compassionate, fun-loving parents who want their kids to have some of what 'everyone' else has. My favorite part is seeing the look on Drew's face when he knows we are going to play. He is so proud of himself and his team. His friends and family can cheer him on, and share in our experience in being accepted unconditionally and part of a team.

Thought for the Day

It isn't how you walk in life, but how you walk through life that matters.