Drew talking to 'Beast' his buddy
We are coming up on our last week of Lokomat. :( June 5th is our last day...I have tried to bribe Terri, the PT to get us back in ASAP, but she is too honest.
There is now a long waiting list...and I am excited for everyone on it! We have seen Drew work so hard these past 7 weeks. He has gained better head control, gotten some increased muscle mass on his cute legs, and his trunk seems stronger. He can stand for longer (assisted) than he could before, and he seems to be trying to 'talk' more.
The guidance force (how much work the robotic legs do) is down to 75% for most of the session now! That means Boogie is doing 25% of the movement to make himself walk! And, he is supporting more of his body weight every few sessions. It must be a hell of a lot of work for him...but he comes thru like a champ! I dread the day I have to explain to him we can't go to Lokomat! :(
His Challenger baseball games start next Wednesday. Stay tuned for pics of our lil' sluggers on their new field!!!
The picture of Drew & his brotha-from-anotha-motha Brendan kills me...it was Brendan's idea to put the wig and glasses on Drew! I love how he includes him in everything. We are blessed to have such great cousins!!!!
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1 comment:
Hey Little M'An!
I see that you love lokomat. I wish I could buy you a machine for your house and have your own therapist come over so you could do it every day. Keep doing those things that your muscles just learned..... and practice, practice, practice. I wish all of you guys who need lokomat could keep going the whole year through. Just think about it. If you could do it straight through, you wouldn't need it at some point, opening up the space for another wonderful young person. It is a shame, that when something works so successfully, that it gets interrupted like this. Hmmmm, maybe you could be an advocate for more lokomat time/opportunities by showing the politicians how well you have done. Ask mommy if there is a study somewhere that you could get in to!!! Knowing her, she has already checked in to that. (:->)
I miss you little buddy. I have to go shopping in the next couple of days and get you a float so you can practice kicking your legs in my pool. I hope I can find the right one for you.
I love the wig. It looks so funny on you! Your cousin is such a goof! Have fun with baseball. I know you will do well. And how about them WINGS!!!!!???!!!!! Uncle Pat and I are totally stoked that they are in the playoffs. The Penguins beat our Caps, so we WANT Detroit to cream them!!!
So much love your way my sweetest.
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