September, really?!?

I feel like I begin each blog post with an apology for not posting more often.  Today is no exception.  We have a lot to catch up on! 
The play, Wizard of Oz, was awesome.  Drew was a munchkin, member of the Lollipop Guild, and a flying monkey.  Sterling Civic Theater is a class-act, all the way.  They have open auditions, allowing anyone who wants a part to have one.  We practiced a lot, (Aunt Joan too!) and Drew made it in 4 of the 6 performances.  Opening night was a no-go, but he rallied back and performed the rest of the weekend like a champ.  We had so much support, especially from Lauren, Simron, Hannah and Amanda.  All of the kids were so sweet with Drew, and he LOVED being with kids his age.  They helped him onstage, calmed him during meltdowns, and entertained him in the downtime.  My favorite times were in the cafeteria, between scenes the kids were in.  There was a lot of that time--kids running around, playing, being kids.  There is talk of doing both 'Legally Blond' and 'SchoolHouse Rock' this Winter.  I am hoping for 'SchoolHouse Rock'.  We will definately check it out. 

Lauren, Drew and Simran as munchkins

Kate's birthday weekend at Terri's was super fun!  It is always a wonderful time.  Drew and I got the flu and were well taken care of by my sisters, but other than that, it was fun, fun, fun!
We grilled out, swam in Terri's awesome pool, went for walks, went to the River Park, Went on a Pontoon boat ride in the Calibogue Sound.  We loved just being with our family.

Drew in HHI on Pontoon
YOU should be here!

Fall means FOOTBALL season!  We are well into the season for Morgan, Connor and Brendan.  Morgan is a kicker for her varsity team, Mott Marauders.  Connor is QB for his freshman team.  Brendan plays for 6th grade St. Anne Eagles.  Jim coaches at Seaholm.  WHEW!  That is a lot of football in one house!  We enjoy going to the kids' games and cheering them on when we can. 

Now that it is almost October, I have to think of a good costume for Drew for Halloween.  Any suggestions, Blog followers? If there any even left!!! LOL

I hope you had a great summer...we sure did.  I am looking forward to a fun-filled Fall. 
Drew says: ROCK ON!


Time Flies!!

A lot has happened since my last post. Drew started Baseball, went to a bunch of Wizard of Oz play practices, participated in the amazing Summer Games Special Olympics at CMU, and a bunch of other stuff.

The Special Olympics was awesome...I posted a bunch of pics on my FB page. It is something that I wish everyone could experience. I could go on and on, but in summary: Their motto is 'Let me win, but if I can't win, let me be brave in the attempt'. There is no one more brave than the athletes, their sponsors, families, friends and supporters.

Drew and I leave tomorrow for Hilton Head to visit Aunt Terri. This trip is a 'girls only' trip--to celebrate Aunt Kate's birthday. Drew will be doted on by 4 of his Aunts, and HH is a great place to vacation! We are blessed that Aunt Terri opens her home to us, and Drew loves spending time with his family. He, Buddy (the dog) and Uncle Pat will be outnumbered! Can you say 'HEN PARTY??!!'

The play Drew is in is 'The Wizard of Oz' and here is the link: www.sterlingcivic.org for information. It will be a great show! The dates are July 15-17 and 22-24. Hope to see you there!

Thanks for checking in, Blog Friends!!! We hope this Summer finds you well and all your dreams come true. :)

I said it before, I'll say it again...

We are so blessed to have the friends and family that we do in our lives. I love seeing the smile on Boogie's face every morning. I know he feels so loved. This past weekend, we went to the cottage and saw our Wertz Warriors friends. They gave him a T-shirt to wear at the Summer games for Special Olympics next weekend. They are the 'Hank's Drew Crew' and if you missed my previous post about Hank's, it is a wonderful restaurant/bar near our cottage. Everyone at Hank's, especially the staff, has made us feel welcome, even in the 'tough years'...when Drew just screamed and cried and had meltdowns all the time. Chris and I felt okay and comfortable there. It was, and still is, a blessing. Drew has grown to absolutely LOVE Hank's. The food is great, the atmosphere is better, and he loves the attention he gets. If you ever find yourself on M-76, between exit 195 and 202 off of 1-75, stop in!

So, the shirt is custom made for Boogie...signed by the patrons and Wertz Warriors supporters. I know he will make them proud. :)

Also, tonight he had his second practice for 'The Wizard of Oz'. Aunt Joan took him, and he did a great job. He recognized the songs from last week, and they did some dance moves as well. He did such a great job that Aunt Joan took him to Boston's for Ice Cream and to meet up with Erin and Tommy. Judging by the smiles and giggles when he got home...he had a blast.

The play is in mid-July. I for sure will keep you all posted. I hope this post finds you all happy, & healthy. Peace.

Munchkin

Today was Drew's first rehearsal with the Sterling Civic Theater for The Wizard of Oz. He is a munchkin, along with about 100 other kids. Tonight, we practiced a song that the munchkins will sing. He loved every second of it. He loved the activity of it; patiently listened to the director and others talk about what is expected of them, and took a short walk in the halls of Stevenson High School with Aunt Joanie while I took notes before practice.

This is a class-act all the way, so far. The people in charge talked about a zero tolerance policy for bullying, cyber or otherwise. They will only accept acceptance of every member of the cast and crew. They stressed the importance of taking ownership in the play, being on time, and committing to the success of the production. This will be a very cool experience for us, and I bet it will be the first of many. These people seem to have an organized, well-run, and inclusive program. I appreciate the fact that they welcome diversity and are creating a fun environment where anyone can be involved in theater. Best line of the night was, after they handed out the sheet music with the lyrics and music and we ran thru it a few times...a little girl raised her hand and said 'excuse me...but I can't read!' At which time a 'Drama Mama' (volunteer mom) helped her remember the lyrics. She doesn't have to read--kids have a great memory!

The play will be in July. There are some fundraisers to help offset the cost of insurance and other things, so I am warning you now that I will probably hit you up. :) Thanks for checking in!!

Bionics, Olympics, and the Yellow Brick Road

Weird title, I know. But there are a few exciting things in our near future. Currently, Drew is breaking in a schedule for 'Wearable Therapy' from Axiobionics.

It is electrical stimulation pads sewn into a custom made garment (left and right arm sleeves) to control his spastic tone and try to re-educate the brain to lessen the abnormal tone patterns. It is pretty cool, and he tolerates the e-stim pretty well. It cycles and alternates the current to the spots on his arms that work against him, when he is trying to have purposeful movements of his arms and hands. We are hopeful that this will lessen his tone so he can learn how to make his arms and hands work like he wants them to!
Drew also got chosen for the Summer Games of MI Special Olympics. He will be competing in swimming and another event. The best thing is, he is going with his BFF Maddie! They get to stay (with the teachers that are taking them) in the dorms at CMU! They will travel together, do the events together, and sleep in the dorms. He will feel sooooooo independent! I will be close by, watching and cheering them on in their adventure!! I am excited, but know as it gets closer I will be a wreck! He and Maddie will have a ball tho. They love fun!
The other cool thing is that Drew's Aunt Joanie found a posting in the paper about the Sterling Civic Theater welcoming people with special needs for their summer production of 'Wizard of Oz'. They are open auditions for anyone, but they want our kids involved. I thought that was so cool. We took Drew for the audition on Wednesday and he loved it! He loved the dancing part more than the singing...we will see where he fits in. He got so excited, and he just loves to be involved in anything. I will keep you all updated on the Olympics and how the auditions are coming!
Peace!!

Bittersweet Symphony of Life

This week is the hardest on me and Chris. Drew's birthday is March 27th. The days leading up to his birth were filled with excitement, wonder, hope, and promise. As I got closer to his due date, 10 years ago, I asked my tummy every day 'do you want today to be your birthday?' We didn't know if our baby was a 'he' or a 'she'. We didn't want to. We believe that God has a plan for all of us; that as long as our baby was healthy, we would be happy. Our family would be happy. We trusted God. Still do.

Drew's birthday is always bittersweet for us. It was the best and worst thing that ever happened to us. Best, cuz we had our beautiful, perfect son. Worst, cuz his birth resulted in such damage to him that his life would be filled with extra challenges, obstacles, difficulties, and disappointments that most others are obilvious to. We are grown, and can handle ANYTHING that life can throw at us. He, on the other hand, is an innocent angel that has to battle not only his body every minute of every day, but society and insurance companies and ignorance and stupidity and close-mindedness and...I could go on and on. The purpose of this blog is to 1)let everyone know how cool Drew is, 2) to urge everyone to see the value in everyone, 3)to educate people that God shows himself in all of us, especially in the 'least' of us. 4) to remind us that everyone needs help--use your gifts to help others when you can.
Boogie (cuz we boogie down...he loves music) is a cool kid who has made more strides in 10 years than most do in a lifetime. Please, when you see kids or adults that are different, just treat them like they (and you)would want to be treated. With basic respect, and with God's grace. I am gonna quote one of my favorite artists, Pink. She seems to have a great understanding of our people. Misfits. Those who don't fit in, for whatever reason. Me. You. All of us, at one time or another. Her lyrics: 'Pretty, pretty please, don't you ever, ever feel that you're nothing, less than perfect...to me...'
Peace.

Life is Ridiculous...

I said it on my FB page, and I will say it again: Life is Ridiculous! I don't know if it's the long, cold, lonely winter or just bad Karma, but there is a lot of crap going on now with people we love. Betsy, my very, very, very great friend and reminder of 'you need to blog about Drew more often!' is going thru some stuff. She is tough; I don't doubt for a second that she will come out on top, after bossing several medical professionals around and making some sweeping policy changes. That is one thing she is great at: making people take notice of things that need to be improved/changed/re-done. There are a million other things I could list too. She has my vote if there is an election to rule the world. She told me once that Drew had 'spirit'. That was the nicest way anyone has ever described horrible meltdowns and seemingly endless tantrums. Most of which occured when we were trying to talk on the phone! LOL
I still refer to those things as 'spirit'. Thank you for that, Beth! That, and million other things that I don't even have to refer to cuz you can read my mind! I know you are an avid follower of Drew's blog, and I hope you know that across the miles, we are thinking of you, praying for you, and missing you like crazy. You ROCK.