'Be who you are and say what you feel because, those who mind don't matter and, those who matter don't mind.' ~Dr. Seuss

Saturday, March 6, 2010

SPRING FEVER

It is March and I am fiendin' for the warm weather so we can play outside! I miss walking outside, feeling the sunshine on our faces. I miss open windows and soft breezes. I miss the smell of freshly cut grass and grilling for dinner. I WANT IT NOW!

This winter stunk for snowmobiling. It might snow again, but at least it's March! Spring is just around the corner. I hope this is a great year for all of us!!!

Thursday, February 25, 2010

Cool things

Drew did a couple cool things this week in therapy. We attend Crawl, Walk, Jump, Run Therapy Clinic and are blessed to have some of the most skilled and creative therapists in the world. They are encouraged to treat the whole person...and are reallly in tune with each child and adult they treat.
They make therapy fun!
Anne, the Awesome OT was working with Drew, and she was counting to 10. She stopped at 9, repeating 9,9,9 and he looked at her and smiled, as if to say 'ummmm, you are doing it wrong!' :)
THEN, she was spelling his name out and she purposely didn't put the E in his name. He said 'neh', meaning 'no'. I am so proud! I knew he knew numbers, but didn't realize that he could recognize his name, enough to know if it was correct.
I wish there was a way to test these kids that are trapped in bodies that don't work correctly. Their receptive language is very good--but since we can't know what they know, we keep the faith and keep celebrating the tiny victories.

Tuesday, February 16, 2010

I was asked to write a bit about what baseball means to us--we have played on this wonderful league for 4 years. We start in the June...come see a game!!

What Challenger Baseball Means to us:

I became aware of Challenger Baseball from an issue of Sterling Heights Special Recreation. I was looking for an outdoor activity that would entertain my son, Drew. Our days were filled with school (if he was well enough to go), doctor's appointments, therapies, working on ADL's, stretching his muscles so he would have proper range of motion and not cramp and contract, and reinforcing what we did in his OT, PT, and Speech therapies.
I wanted us to have some fun. I wanted us to join a team, where he would learn patience, responsibility, teamwork, and make friends. I wanted us to have something other than therapy and I could actually answer the question: "What's new with Drew?", since we don't really have 'Milestones'...we have fraction-of-an-inch-stones. Our successes are measured differently than most.
Challenger Baseball provides us with a place where we are part of a team, a community of like-minded, open, compassionate, fun-loving parents who want their kids to have some of what 'everyone' else has. My favorite part is seeing the look on Drew's face when he knows we are going to play. He is so proud of himself and his team. His friends and family can cheer him on, and share in our experience in being accepted unconditionally and part of a team.

Tuesday, January 19, 2010

2/3 done

We are almost 2/3 way done with January; my least favorite month. For the most part (see--I am off my game; starting sentances with prepositions! Not enough sunshine for me...) it is a gray, cold, no-fun month. Sandwiched between the Thanksgiving-Christmas euphoria and Spring fever.

I don't have many new pictures to share. We are having our 4th annual 'January Sucks' party on January 31st and should post some from that. We listen to Jimmy Buffet, Michael Franti, Bob Marley and other island music and will be grilling out and having a dance party to celebrate the end of icky January. His Valentine's Day dance is coming up in early February too. That is always a great time. :)

We hope all is well with our followers...love ya!!!

Monday, January 4, 2010

BETH!

Called me out YET again for not keeping the blog current. It is so comforting to know you can still boss me around from across the country. No bullshit, I am serious! :)
I miss you and will update the blog in a more timely manner. OH, and thanks for being the music trivia queen.

Drew misses his Aunt Betsy. Don't have any pics from the past weekend, but we only got out once on the snowmobile cuz it was so freakin' cold. looking forward to MLK weekend when the fam comes up, last year was a blast!!!!

THINK SNOW!!!!!

Tuesday, December 15, 2009

30 days in the hole...

I can't believe it has been a month since I blogged. We have been sick...thank you, Michigan weather! With a special shout-out to Global Warming--We are alternating between flu, respiratory issues, and yes, allergies! I am still coughing like crazy and am considering taking up smoking; if I am gonna feel like crap I should at least have a vice. Tee hee!!!
Drew is in the throes of yet another cold. He felt good for a few days, (after his resp. infection/ear infection cleared up) and now is super congested and coughing. That is why I titled this post '30 days in the hole...I feel like a prisoner to viruses/bacteria/and other assorted crud.
ANYWAY...Drew continues to rock our world. He absolutely LOVES Christmas and everything that comes with it. Just like his daddy! I would be a total Grinch if it weren't for him. I love seeing his face light up when he hears a Christmas carol for the 1,000,000th time. We went to my friend's Christmas service at her church, and he was sooooooo geeked every time they sang! He stares at the tree, and will crane his neck if he can't see it. Tomorrow, Santa is coming to his school--I can't wait for the picture! Last year's pic looked like Drew and Santa were old drinkin' buddies--they have conspriatorial grins on their face, like they know a secret we don't!!!
We hope this Christmas finds everyone happy and healthy. Remember the Reason for the Season! We look forward to hanging out with the family at Joan's on Christmas--attire is 'pajama party' (great idea, Erin!) and can't wait to see everyone. Well, almost everyone. We will miss the Annessa clan and the Schenk's, but they will be close in our hearts.

Thursday, November 12, 2009

Monster Trucks, Baby!!!





Drew, Danny, Monika and I went to the Palace to see the Monster Trucks this past Saturday. It was fun!!!! Drew wasn't sure what was going on at first, but loved the trucks and the activity. His favorite was a car looking thing on huge monster truck tires. They did a 'wheelie' contest, a 'burnout' contest, a motocycle show and then freestyled it for the grand finale.

The motorcycles were by far his favorite...they jumped super high, over vans and cars and the span was a few hundred feet!!!! I know our next show will be the motocross when it comes to town. He kills me. :)
We always have fun when Danny and Monika come with us...Danny is a cool kid and he cracks Drew up! I bet they will come with when we go see moto-cross!!
Two weeks till Thanksgiving. I am Thankful every day for my beautiful, loving family and friends. Every day is a gift and an adventure. Life is what you make it, and be kinder than necessary...remember everyone is fighting some kind of battle.

Thought for the Day

It isn't how you walk in life, but how you walk through life that matters.